Fecha: lunes, 20 de marzo de 2017 - martes, 21 de marzo de 2017
Inscripción: La asistencia es gratuita. Pero es necesario inscribirse en el siguiente link donde además podréis encontrar información adicional: https://ec.europa.eu/eusurvey/runner/RareDiseaseRegistries
Dónde:
Hospital Universitario La Paz
Paseo de la Castellana, 261, 28046 Madrid
Event supported by the Consumer, Health, Agriculture and Food Executive Agency (Chafea) for the dissemination of the 2008-2015 Health Programme results and organized by the Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III - Spanish Ministry of Economy, Industry and Competitiveness.
The workshop will bring together all the key stakeholders in the development of registries for rare diseases allowing them to share the results from several EU Health Programme projects and Joint Actions funded between 2008-2015.